GETTING AN ACT IN THE FREAK SHOW

Image Source: http://www.medical-dictionary.thefreedictionary.com

Why does Ehlers-Danlos syndrome (EDS) have to be a freak show disease?  My skin doesn’t stretch enough to be the India Rubber Woman and I’m not hypermobile enough to be the Human Pretzel, but I look like a hybrid of marbled, blue cheese and the Purple People Eater from the venous pattern and purpura and petechiae covering my body from nearly head to toe.  The icing on the cake is the beyond frustrating keratoconus, which turned my corneas into little cones. Alas, the latest problems that have been discovered could surely guarantee me an act in the freak show.

Possible employment? http://www.plasticjoe.com

 

I’ve been working with my great, new optometrist over the past couple of months to try and get scleral contact lenses, which can correct keratoconic vision to a point by creating artificial corneas in essence.  As I’m post-CXL surgery, the progression of my keratoconus (KC) has been halted and my vision is stable, not that it means I can see well.  The trial pair of scleral lenses had about 3 pluses and a lot of minuses, which I typed up in a list with bullet points for my doctor.  He thought that was very amusing, but in a good way, and it actually helped to narrow down why I was having so many issues with the sclerals, aside from my dry eyes which will prevent me from wearing them daily it seems.

My doctor got down to business getting the prescription just right as it was a hair off and he can get my far vision a little clearer, although that is where things are very good for me with sclerals.  I mentioned in my bullet points that I still can’t see well close-up and that while the T.V. image is crisp, it often has a double image, as do all the illuminated signs at night which makes it hard to drive still and is different from the multiple, faded images I see with keratoconus.  My doctor thought that the better prescription would help, as sclerals work on both nearsightedness and farsightedness.  I wasn’t that positive, though.

I had also mentioned in my list that the intermittent strabismus, or intermittent exotropia to be exact, that I developed when my brain shut off vision to my worse eye pre-CXL wasn’t gone as I suspected.  It reared its ugly head again when I started inserting the new sclerals.  As the contacts are akin to plastic bowls filled with saline solution, I have to use a rubber holder of sorts to put them into my eyes while looking into a mirror laid flat on the vanity with my head parallel to the floor.  It’s really not that easy as the lenses are so huge and I have to hold my eyelids open very wide.

The right contact goes in well, but when I go to put in the left one, I can literally see my right eye turning out—see Figure B in the 1st image—and then my left eye that I’m trying to work with does the same!  In other words, both of my eyes are turned out and it’s a little freaky to say the least.  Now, I’m not making fun of anyone but myself here—I dated someone in high school who had exotropia and it wasn’t the intermittent kind.  Regardless, a scleral lens has to fit over the cornea, so if my left eye has wandered to the far left, out falls the lens and saline solution and then I have to repeat the process 10 more times.  Suffice to say, I’ve been a little late to appointments the last month.

My setup for scleral contacts lenses

 

It’s a very good thing I made a bullet point about that strabismus issue because my doctor did a couple of tests. He had me focus on a letter on the wall and then flipped something over my eyes in a rapid motion, so that every second I was using either the right or left eye to read.

“You do have strabisumus!” he told me, as he’s always amazed to have a patient who speaks doctor talk. Apparently, the test made my eye turn out as I started to lose vision in my right eye and couldn’t see the letter, only a blank blur.  Yet, I can somehow make both eyes turn out when putting in the sclerals for some odd reason.  That sounds like a freak show act if I ever heard one.

“Great,” I said, as I thought this was just some transient thing from having low vision for 2 years and thus some atrophying of my extraocular muscles, which control the movement and alignment of the eyes.

“Am I going to need surgery?” I asked my doctor. “You know about my scarring issues with EDS.”

He told me, “Not now at least.”

Extraocular muscles–what are lax from EDS and where I may need surgery. http://www.medicalgeek.com

 

Then, he was on a mission and started rifling through my purse, which is fine as we spend most of the time joking like we’re old friends.  I asked him what he was doing and he told me that he was looking for my phone.  I grabbed my cell and he told me to type a text.  So, I started to and he noticed how close I hold the phone to my face and he pulled my arms down.  Well, that’s not fair.  I knew he was trying to figure out my difficulty with seeing close-up and I mentioned that the screens on cell phones and my blown-up laptop aren’t horrible with my slcerals in, but print text was awful.  That was in a bullet point, but I’ll cut him some slack since he’s my favorite doctor and knows all about EDS.

He gave me the paper I had typed up in 12 font at 200% in Word to read, which now looked very small and wonky.  With the sclerals, the letters tend to move around a bit and make me feel sick; that’s the best way I can describe it, unless it’s very small text and then my head starts to hurt.  He kept putting different lenses in front of my eyes and asking if it was better, but I kept saying that I didn’t notice a difference. I figured this was the best I would ever be able to see if none of the lenses over my sclerals helped.  However, I must admit I like the rows of little lenses lined up in long drawers—it’s all so old-world and I got to wear the opera glasses again for a minute.  You sure wouldn’t get any of this from the optometrist in the mall.

 

Then, my doctor had me look up and read the paper with the bullet points directly in front of me.  He must have been watching my eyes because he had a rather deflated look on his face when he stopped me.

“You have convergence insufficiency,” he said in a rather sad voice.

“Noooo!” I whined. “No more diagnoses.  What is that?”

He grabbed something and told me to watch his eyes while he brought it closer to his face.

“Do you see my eyes moving?” he asked me.

“Oh,” I replied. “Your eyes are moving inwards as it gets closer to your face.”

“Right,” he told me, “But your eyes don’t do that and they aren’t in perfect alignment in general, either—they both turn out a bit and all of that is causing double vision.”

“So, I have more vision problems than just the keratoconus?” I asked.

“Yes,” replied my doctor, “But convergence insufficiency is not that rare.”

More information on convergence insufficiency can be found here.

Per my eyes not being in perfect alignment, he tried to reassure me that it wasn’t noticeable, but I swear that one eye looked a little off when the KC first started.  I demanded to know if I looked like Jaws from James Bond, and my doctor couldn’t believe that he was the image I associated strabismus with.  Jaws actually had acromegaly and I don’t think he had strabismus.  I should have said Marty Feldman, who was only in my favorite movie ever growing up and does the Abby Normal line I use all the time.  Here’s the video clip. He had strabismus from Graves’ disease, but I see a resemblance, and it’s not just the eyes.  He may have been a second cousin. How long until the freak show comes to town?

Igor in Young Frankenstein–my new, male twin. http://www.screenjunkies.com

 

My doctor put lenses with prism in front of my eyes and I could see the text, but my head started to hurt.  Prism bends light so that people with convergence insufficiency can see close-up and I could get readers made with them, but my doctor said they can be hard to get used to.  Contacts and glasses are just too much right now.

I remembered that when I had the intermittent strabismus pre-CXL, I did some eye exercises I found online as I was so worried my wandering eye would prevent me from getting the surgery.  I asked if that might help to tighten up my muscles, just like I do in physical therapy for my loose joints.  My doctor handed me a plastic, Popsicle stick with a tiny E on it. He told me to focus on the E and pull it towards my face and then away, which I was able to do.  I will now be doing this for 5 minutes every day, as it sometimes can help, but now I can’t remember with which issue, so hopefully it’s both.

My doctor also confirmed this could all be secondary to Ehlers-Danlos, but that maybe I had had it since childhood like most people.  I never had problems with my near vision or any strabismus before keratoconus showed up, which is around the time my EDS started to affect more of my body, so I’m betting on EDS being behind all of this, or that and and KC combined.

I left with more health matters on my mind and then got a call from the assistant of yet another specialist I need to see as I was sitting in the parking lot of CVS.  How many body parts can fall apart from faulty collagen?  I went in to get my pricey prescription and got $5.00 in Extra Bucks—free money to spend at CVS for those not familiar with the chain pharmacy. I almost make money from all my prescriptions.

Then, I remembered I needed a Popsicle stick, but couldn’t find any, until I found the little freezer that had real, lime Popsicles, one of the last fruits I can still eat.  Eating the lime Popsicle that I got for free in the desert heat made the bad news a little sweeter, especially if an employment opportunity where I can just stand while people gawk at me may be in my future.

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26 thoughts on “GETTING AN ACT IN THE FREAK SHOW

  1. WordPress sent me a Happy Anniversary! Against all odds, I’ve been blogging for a year now. As someone with a debilitating disease and low vision, I can’t express how hard this is. Over the past year, I’ve had visitors to my blog from 99 countries and 6,749 views. Seeing all the flags from around the world is my favorite. I hope this means that my goal of helping others play the hand they were dealt was realized.
    A 🙂

  2. […] It’s a relevant word right now because since I’ve started paying attention to it, I’ve noticed some strange things about my sweating pattern.  Today’s discovery:  asymmetrical sweating.  I am currently sweating on the right, but not the left.  Uh…I’m pretty sure that’s not how I used to do it.  I distinctly recall scrubbing out sweat stains on some of my shirts, and stains on both sides.  Maybe I’ve always been right dominant?  Dunno.  But today’s peculiarity makes me wonder if I can join A at Playing the Hand in her circus act. […]

  3. dyspatient says:

    Gah, I have the convergence thing too. It sucks that you have this on top of the “pointy eyes”. Love Young Frankenstein. “Damn your eyes!” “Too late!”

    I tried the eye PT too back in 2003 I think. It gave me monster headaches and eye pain. I was doing it for eye pain so this seemed like a consequence that was just too silly to allow me to continue. So now I have the drifting eye….slowly drifting like a continent towards my temple. My dad has it too, so EDS or just the eye, whichever, I can blame my family and THEIR damned eyes.

    • Really? I’d never heard of this and had normal (not Abby Normal) eyes before the KC hit. I know the EDS is behind all of this. ALL of it! I would never have been able to read so much and do design school with wonky eyes. I know the EDS is the root cause of the wandering eyes for sure, but the loss of vision to one eye brought on the strabismus for sure and I’m thinking the fact that that eye became my better eye after CXL caused it in the other eye–again from the EDS as this does not sound normal for strabismus to set in so fast. My mother has amblyopia and no strabismus at all (mid 60s) and the EDS is from her, but she’s so mild. Argh! So, I’m not doing the true eye PT, just this Popsicle stick thing which is rather like pencil push-ups and haven’t been proven effective, which is not super reassuring. I do want to look into vision therapy (eye PT) and will ask next time, but not sure what insurance covers it and I found a place due west, which means I can’t drive due to the sun. I really do have faith based on PT for my body that it could work. I’m so freaked about the surgery. How the hell do they get to those muscles? Pop your eyeballs out and what about my scarring issues?

      Oh, I so hate the wandering eye and notice it all the time now with the right, which is where it started. I’m wearing sunglasses 24/7–forget it! It does it when I space out or am really tired mainly, aside from dealing with the sclerals. Nooooo! Total Igor. We totally could share the stage! I could care less if they paid me to have people stare at my eyes and veins, etc., etc. Well, I’ll keep you posted if I can do the vision therapy and if it works but won’t get the new sclerals for nearly a month.

      I know, Young Frankenstein was the best EVER. 🙂

    • I’m re-sending this b/c I think it went nowhere? I wrote it in comments on my post as I couldn’t figure out another way and am going bonkers so if you don’t mind sharing…

      I was thinking about 2 things you wrote but kept forgetting to ask.

      1. How are you able to read/see close-up with convergence insufficiency? Is yours mild or do you have reading glasses with prism lenses? I feel like MAYBE I could see a bit better without the painful sclerals in small places (like if I’m not leaving, which is most days) if I could get my eye alignment better, but that involves the strabismus too, of course. Just a hunch.

      2. You mentioned doing the vision therapy/eye PT for pain. I’ve had a Hx of pain in my extraocular muscles, but it was worse yrs ago when I thought I had fibro and figured it was due to all my muscular pain. I remember reading something about stretching those muscles (wish I hadn’t done that now) by looking really far up, down, and then to the sides. If I do it now, it still hurts! Is that the pain you had or was it actually in your eyeballs?

      This is all driving me crazy and I just want it gone!!!
      Thanks for any info, A

      • dyspatient says:

        I don’t see close up well, so I hold things out far, then my arm hurts. The plus side is that within the last few years, I’ve read nearly exclusively digital content, which you can blow up bigger. I find that I am having to sit further from and blow up bigger on the monitor these days or I lose where I am, get ghosting on letters, and get eye pain. I haven’t had a ton of luck with eye docs, so I am just kind of sucking it up. It’s not so bad yet and while my medical history does not necessarily read like it, I do hate the doctors and the doctor appointments. I’m due to go though – the glare effects in what others consider to be a normally lit room are getting to be rather problematic. Need to find one that isn’t a dumbass.

        The eye pain was eh, yeah eye pain. I recall telling the eye PT person that it felt like I needed to take my eyeballs out and massage them. She cringed and made disbelieving noises (possibly utterances, it was a while ago and my brain has just whittled the memory down to intention without content). The eye exercises involved taping a card with two figures printed on it to a wall a certain distance from me then practicing putting the two figures together into one, then back out to two, then in to one, etc. Hurt like hell to do, and gave me a headache. I was still reeling from lyme disease then and the last thing I needed was a headache on top of the eye pain on top of everything else. So I stopped. Maybe if I’d kept up, the eye pain would have abated. It has gotten better since then but whether that’s due to getting the lyme treated or to not being in the most heavy reading class of my grad career while teaching two sections of intro psych lab, I’m not sure.

        The convergence is ok for large scale things. I suspect I’m doing a lot of top down there, everything is always a little doubled but not bad. Worse when I’m tired. Worse when it’s text, although that may be a movement effect (eyes don’t keep up well with each other when they’re scanning to read?) or attention effect (I notice it more when I’m reading?) or both.

        Sorry I can’t be more help! BTW, we used to do a prism glasses experiment in psych lab – it was meant to demonstrate the primacy of visual sensory input. The kids loved it. Made ’em all wobbly for a few minutes after too. Fun.

      • Thanks!
        That was actually super helpful. If I don’t have my sclerals in, which is 5 days a week or so, then it makes no difference due to the KC, but with them in they should clear up the near-vision and that’s how my doc figured out the convergence insufficiency and the misalignment of my eyes as mentioned. I knew I had the drifters, but am more aware of it! Oh, it’s super bad and I’m so worried I’ll need surgery–I can feel it pulling out right now and swear it’s getting worse. Ex., I can’t see my cell well, but use that for my alarm–well alarm #2 as you know my sleeping thing. It’s really bad when I get up, and I realized it’s b/c my crappy, R. eye is due left. So, now I’m closing that eye to reset my alarm and sleep more! How freak show!

        I do the same thing with reading, so thanks for sharing. I can’t see anything very close up–seems like when I had 20/400 vision. This is with my sclerals again, but if I hold the paper/package pretty far away, I can read it, but it’s like the words are moving, which I read is a symptom. Ditto for any double vision and with my KC, it’s multiple images so used to that. I still can’t figure out the TV and a clear, double image with my lenses, so think that’s from my eyes not aligning ever. Oh, I took photos and yes, you can see it in my R. eye as suspected. I have more sclera exposed (nose side) and I got a photo with the floater as I can make it happen it that eye… OMG! I totally am Igor.

        I really don’t think I had glare (and none of the above) pre-CXL surgery (strabismus showed up when 1 eye got shut-off), but it can happen with dry eye, so food for thought. Oh, my eyeballs hurt from the dryness, but also the surrounding tissue–hence the scleral issues. Prior to KC, it was literally an ache in those muscles behind the eyes, much like in my body. Anyway, the vision crap (in both of us) is all from EDS as it’s linked to strabismus or strabismus-type issues from my research, even if it’s not all called that. The extraocular muscles are just going lax from it. Found this abstract–bingo:
        http://www.ncbi.nlm.nih.gov/pubmed/3357129

        I’m still trying to figure out what the hell you did in vision therapy (like how is that possible) and since my benefits are out if even covered, I’m sticking with the Popsicle stick that has done nothing thus far. Argh. Oh, I remember you told me about that project with the kids ions ago and now I get it! The lenses w/prism my doc put in front of my eyes gave me a headache instantly, but I could see the paper I had typed up perfectly. Hmmm. Well, I think I’m screwed if I can’t wear my sclerals every day, as that’s the only way I would ever be able to read. The laptop really sucks now that I’ve seen it with those in. Sigh…. Thanks for the feedback and sorry for the dissertation–slept ’till 6pm and that was only 6 hrs of sleep so acting funny over here. Monsoon is killing me and I (1st time ever) had to cancel all my appts. this week. 😦
        A x

      • dyspatient says:

        😦 sorry to hear it’s still monsooning there.

        I had the popsicle stick too. But there was also that figure card. It had a cat on it. One side was a half an outline and the other was a horizontal stripe fill without an outline…there may have been other details I am forgetting, and the idea was to make your eyes move so that you got one, unified, outlined and stripe filled cat. I recall it making me feel like I was trying to do one of those magic eye pictures (which I CANNOT do, ever).

      • It sounds like something that would make me car sick! How the heck would you do that? Oh, you lost me on the magic eye pics., but no worries. I’ll have to wait until winter for vision therapy due to my inability to drive in sunlight and I don’t think I have coverage, so maybe I can’t do it due to costs. My eye has been out of alignment almost the whole day and I don’t know what to do as it’s irritating and makes the KC vision even worse (not just close-up). This is really my biggest worry as I can’t read unless I have the sclerals in (the holding paper far away thing), which is almost never as mentioned. Ugh. I don’t do well with surgery and don’t want any of the crap doctors out here operating on my eye(s), which will just lead to even more dryness too. Sigh… I’m so sick of this disease that’s destroying you and me piece by piece. 😦

      • dyspatient says:

        I hope you didn’t lose coverage. It sucks that your eye is being so bad.

        I’m sick of it too.

      • I’m okay there, but can’t get a clear answer if it’s covered and all therapy is going out next week regardless, so rather irked. I don’t know what to do b/c I heard it’s a lot of money and I’m still trying to figure out the PT thing since I’ve pulled so much from savings due to all the issues lately. Do they want to pay for surgery instead? I’m sooo sick of my drifter eye as it just seems to have gone crazy the last 2 mos or so and happens all the time–even when I do errands now, so I’m schlepping myself through Wally World and have to keep focusing to get my eyes as aligned as possible. It really bugs me when I’m online as I can’t see the computer, not that it’s great anyway. 😉

        Other news, I got an appeal form e-mailed to me as my ins. sent the wrong thing and dumb receptionist girl at my doc’s couldn’t tell me what the form said (can she read English?)–so after 4 calls reminding her, I got the e-mail. So, that nurse I mentioned had filled it out. She really is an EDS guru now and she needed to explain in the appeal that I can’t take most meds (not that they’ve helped) due to AUTONOMIC DYSFUNCTION. Ha! I had no idea! The issue with meds came on with the EDS and I get bad side-effects from nearly everything. So, there’s another problem from it. Thought I’d share. My father has this problem (not as bad, but some “almost dying” experiences which are questionable) so again, it’s like all the ANS crap is from him, but then really hit me when EDS showed up. Oh, what a crappy gene pool I’m swimming in. :/

  4. I read half of this post and haven’t been able to get back to it. It’s been a crazy week but things are fine. I was worried about your cracked tires! I had the same thing happen to mine only they were new. Hope all is good now. Catch up soon i hope. First day at work.

    • No worries. My goal is to post 1 x month so plenty of time for the freak show! I am a mess about the cracked tires! They’re 7 yrs old w/great tread, but it’s age and the UV and heat here. Most say toss at 4 yrs in the desert. I got someone to get my originals (also 7 yrs old but in a garage and am told no cracks, but doubt they’ll last long) and am heading to the shop tomorrow after PT, but can they get me in? This is my one shot as this guy has a truck and then I need him to try and sell the original wheels to a llantera down the street (Mexican tire shop) while I wait w/my car as they’re worth a couple hundred at least and that guy is on the shy side. Great! I can sell those things, but not with my Mustang that holds a bag of groceries in the trunk!

      Good luck at work. Yay! Fingers crossed for you! I will be getting no sleep tonight as I have to get up early and it’s almost morning. Sigh. Talk soon… and thanks for droppin’ by. 🙂

      • Hey! I never got sign of your reply. Odd eh? WordPress seems to be acting weird on my computer lately – like it doesn’t recognize me and I get logged off all the time. Maybe it’s some kind of security parameter on my computer. Gen changed something some time ago… will have to look into it.

        My first car was a Mustang! Loved it! The same tires for 7 years! Wow!!! I had to change twice within one year with that Jeep. I was sooo frustrated. Anyway, so happy I don’t have to worry about that anymore with my little Honda Civic LX. I’m now driving everywhere and it has cost me 150 for the last three weeks (and gas here is expensive!). I’m thrilled. 😀

        I’ve been reading and re-reading your post half-way only… lol. I’m thrilled that your ophthalmologist seems so smart. I was happy that you inserted links as well – I had no clue the lenses were so huge! No wonder they’re so difficult to put in. So, will read on soon and I’m curious about the rest… hope your little is still good.

        Work is really really good. The people are all very smart, the atmosphere is amazing, we have a gym in there and what not. They’ve been telling me not to worry as new positions are constantly opening up and that they’d give me something I really like (the big boss told me that!). It’s a stress position and honestly, I haven’t felt this good in a long time. Gen is doing good taking care of herself on her own. We’ve been called for the appointment in Genetics next week – did I tell you? It’s in Halifax again. Not sure how that will go.

        Gotta run. So happy to read you! Will drop by soon. 🙂

        xo

      • Ugh, I just hit something and lost my long comment. My stupid eye won’t stop drifting and I can’t see!!! Well, no sclerals in as they hurt too much, but it does it when they’re in too. So scared I’ll need surgery soon.

        It’s too hard to rewrite everything, but I’m so happy the job is good and Gen is okay on her own! I do know about the genetics clinic, but not that you have to go to NS again. Argh.

        Btw, cool that you had a Mustang–this is my 3rd–and you had defective tires on your Jeep! If the tread is still good, you can go at least 6 yrs outside of the hot, dry desert. I think I had miracle tires (actually dated ’04–I couldn’t see)! I don’t know how they didn’t separate/blowout. I have the same ones on now (but the originals stored in a cooler garage) but date ’06 like my car. Odd! I picked up $40 selling the old wheels and hubcaps at a store in town but I never used those and tried to haggle for more to no avail. Well, that almost paid for the mounting/balance so all good. Just hope the new (original) tires last a few yrs as I’ll never go through the tread.

        Glad to hear all the good news!
        A 🙂

      • Oh, Moush went for her 2-week check-up for blood work after starting Palladia. All okay and she seems okay with it–despite all the fuss–but she’s eating less (side-effect), so that’s worrisome. She won’t eat my steak kabobs that I get every week, and she normally just stares at me when I have my huge, shallow bowl of food as she knows that’s my kabobs and whatnot and I give her a bit at the end. Just worried sick in general as doc doesn’t have much faith in the med since she’d need the genetic mutation and we’re about 5-wks post-op and I keep feeling the area in fear. Oh, I so hope this will work. :S

      • Poor little Moush. Hate to think of her sitting there staring at your bowl like that and not her usual self. I understand your worries and am praying for Moush Moush to get through that terrible monster that is making both of your lives so difficult at the moment. Hang in there and I will keep good thoughts. xo

      • Aw, thanks. So sweet of you. I did get her to eat some of the cream cheese I bought which is about to mold and the lactose hit her (nothing bad) which is why I can’t eat it (very bad). She’s weird with food in general. I found that canned pumpkin was good for digestion (fiber) and started her on that last year. The fur on her ears that she’d scratched off grew back, too! Also good for dogs, fyi. Sometimes she’d eat it and other times she’d go to the other side of the bed! Lol! We did a dance like that with the cheese–it’s like she thinks I’m giving her poison! The steak is troubling as she gobbles that right up–she seriously hangs off the bed like a tiger in a tree staring at me and waiting her turn. She is eating her dry food often, so I have no clue, but she hasn’t regained that weight she lost from the surgery (was 5.8 lbs and still at 5.3–so teeny!) and I know she’s on a lower dose of Palladia for her weight. Could the med. be affecting her taste buds? She has no sense of smell from an old virus that wiped out her sinuses. What a life. Hope things are still well on your end…
        xo

      • Actually you may be right, her sense of taste is probably affected by the meds. Many cause a metal taste… So that really makes sense. I say if she is eating at all her appetite may not be the issue. I’ll be back back on this… Gotta go! Xo

      • Thanks and it does note weight loss as a side-effect, but maybe she’s just eating less?! Always need a science major around. 🙂
        xo

  5. Hello A. Hope you’re OK. How’s the little girl? I’m hoping she’s well and that she’s eating a little better. I’m busy but finally in a good way. Went to Halifax with Gen! I’ve posted a little update. Do write me a word if you feel up to it. I miss you. 🙂

    • Hi Sheep!
      I never slept last night and am upside-down/out for the count with this monsoon. Ugh! Even Colorado up north is flooded so I think the world is coming to an end. Lol. I cancelled all I could for the past 30 days and have been hunkered down with the pain going into my joints and have massive cabin fever, but still hanging on. Moush seems OK (fingers crossed) as we’ve entered the danger zone (2-mos post-op yesterday for her and 1 yr for me today!!!), but is having a lot of side-effects from Palladia. She got a GI bleed picked up on a stool sample (good thing she pooped at the doc’s due to stress, which I’m planning on doing with the bad docs in town!) and has been on an anti-ulcer med 3 x day. Lots of fun for both of us. Then she got the runs, so we lowered the dose of the GI med w/o luck, so it seems it’s from the Palladia. Great! Doc wants her to skip 2 doses (4 days) and report back. I don’t want to stop the med so hope we can go back on ASAP and add a new med. Oh, fun! Otherwise, she’s acting fine but has lost a lb and is so skinny as is. Sick person + sick pet!
      Miss you too and will head over to your place. Glad work seems to be going good.
      A 🙂

  6. Mel says:

    I know how you feel! The little rubber thing didn’t work for sh** for me. I mean, it did a couple times. But more times than not I pulled out the rubber thing, the lens wouldn’t stay in my eye. I resorted to balancing the lens on my index and middle finger, and that works MUCH better.

    • Hey Mel!

      Sorry I’ve been out of touch, but things have been rather b-a-d with my health, my cat, etc. and I took a break from blogging. Hope you’re doing okay! Well, if you read the latest post (as I am really trying to blog again on a part-time basis), the sclerals are rather pointless due to my severe dry eyes as I’m lens intolerant. Sigh. I hear you about the insertion, though (and the removal with my dry eyes as they’re glued on)! OMG!!! I can’t tell if it’s in and then I read online to look at the hole in the big holder so it’s inline with your eye and how do you see that with KC? Lol! Then I have the convergence insufficiency, so when I look into the mirror to get the lens in my left eye, my eye shoots out to the left (the drifter). Argh! So, I have to squint my right eye do the left eye totally blind! It’s not getting any easier and I do have to wear them (owww) when I get out so I can drive. I got so mad today as I couldn’t get them in that I was swearing at them! Haha. I want my old corneas back! Well, I don’t think I’m ready for your method–I have seen that or the tripod style–but we’ll see! Thanks for the tip, regardless. I think my biggest problem (aside from the left eye) is that I have heavy, upper lids (see Gravatar) and can’t keep them open and as you know, the minute that cold saline hits… Blink!

      Take care and thanks for dropping by,
      A 🙂

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